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edwardo

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Reply with quote  #31 
Not that I'm aware off sorry, not that I know much about it other then I read the term on this thread and then googled it, how are you doing now?, any better?
Q40

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Reply with quote  #32 
Quote:
Originally Posted by SLR2009
Hey guys,

I appreciate the help

Here's an update

The brain damage is worse than it was a year ago (I wish I could go back a year ago, that's how bad my issues are). My vision is much more impaired and I can barely move the shopping cart in the food store (I feel extremely drunk). I am always nervous, anxious, hopeless, depressed and a lot of times I don't even want to live anymore (but I'm not suicidal, I just want to live a normal life). Too bad I didn't die from using the hairspray, it would have saved me the hell that I've been going through during the last 13 years. I always have mood swings that are torcher for me to deal with on a daily basis. Too much pain and tension build up in me through the day which causes me to become depressed and irritable.

I care about very little and I rarely have any appetite to eat. Thoughts barely enter my mind and I have difficulty performing tasks I used to be able to do. Why does the brain damage keep worsening? If someone sprayed windex or paint I will get permanent brain damage. I am very scared because my issues continue to worsen and I haven't touched the hairspray in 13 years. Do you think the Myelin sheath was damaged? Do you think my optic nerve was damaged or my brain which is why is why my vision is so impaired. Every time that my vision worsens so does my other issues, any idea why?

I don't recall if I mentioned this but I tried driving lessons about 2 years,unfortunately I couldn't drive safely and couldn't continue [frown]. My family is working on getting me setup so I can go and have 20 HBOT (Hyperbaric Oxygen Chamber) sessions. (the reason we never did this in all these years is because we can't afford it ($5000 for 20 sessions). My family is thinking of a way to pay for 1 month of treatment but that hasn't been decided on yet. Do you think it will reverse the brain damage? Can it cause me to become blind or can it worsen the brain damage?
I read a lot of articles about the HBOT and reversing Brain Damage but can't find any regarding Brain Damage from Inhalant Abuse.

Thanks




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Regina Smith
Q40

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Reply with quote  #33 
To SLR2009

I really feel for you what you're going through. Your world must feel very very black. You might've already heard this, but there is one Hope. His name is Jesus Christ. He is very real, very close and deeply cares for you. He is not from a distance away, but very close and very real. 

One thing that has really helped me is to talk to him like He was standing right beside you, like a personal Friend. Tell Him what's on your mind, your hopes, your fears, your anger and your deepest struggles. He loves you and is right there closer than a brother. I am not just another quack peddling my religion, but Jesus can be just as real to you as your closest friend, even closer. Just try HIm, wholly throw yourself onto Him. Ask to feel His peace and love. He is not just waiting there with His foot ready to stomp you. He knows all about your pain and struggles, intimately. Good luck & I am praying for you.

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Regina Smith
edwardo

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Reply with quote  #34 
Hey SLR, Iv been trying to get in touch with you have sent you two pm's already, Iv been scouring the net for brain damage from inhalants and you seem to be the only other person out there still suffering with the consequences and like you the only thing keeping me going is the possibility of a cure, Iv found info stating inhalants can damage the cerebellum causing damage to sight which is what could have happened in your case, as for me all my symptoms coincided with huffing petrol and I haven't been the same since, I can strongly relate when you say its better to have died from the inhalants rather then go through the hell its caused which for me as been 16 years.

Anyways I have 20 hbot sessions lined up just need to get a Gp referral to go ahead with it, let me know how your getting on or if you have gone through with your hbot.

Best of luck.

Ed
CeciliaRaul

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Posts: 14
Reply with quote  #35 
My heart honestly breaks the more I read the different cases of brain damage due to inhalants[frown]
I can relate and I can say I know exactly what your going through ..
When I was about 12 years old I discovered I could get a high from the computer cleaner .i didn't like it much but I did like the high it have me! Soon after that I discovered I could get the same high using Air Wick! I did that on and off for about a year ! Not knowing so not fearing the consequences it would permanently leave ...It compleatly changed my life and not at all for the good .. My life changed around the age of 15 ..I remember sitting in front of a church with a friend and feeling a blow to my head . .after that my life would never be the same as before ..I felt as if I entered another world . Still having contuse I knew I was in the wrong for the bad I had done using Air Wick I was now forced to live in my own world(At least that's how it felt) .. Being scared to come out to my family I kept it to myself ! I was so scared and so lost yet I refused to let anyone know ..I went on with my life even with all this .i met the father of my son now he's 4 ! Very domestic relationship but for the first time I came out about my problem .To my surprise he just thought I was crazy craving attention! 3 years of that bit a huge blessing came when I met my now fiance Raul .. Afraid to speak out I kept it away from him till about 10 months ago I realized he was different and loved me and my son dearly so I chose to come out and tell him ..And now he's my biggest support system. I let him know this ....'' I'm not normal I'm different I don't see this life the way you see it I feel like I'm in my own world ..as normal as I may act I feel so lost ..My memory is bad and only getting worst ..being3 months pregnant with my now 3 month old baby boy . We chose to wait to look for answers .. Now being in so much pain I chose to go to the ER maybe they'll have answers right ?? They did a Catscan and they came out normal .i was so hurt by the results because I knew I was far from normal ..so come to find out what I need is an MRI which I'll be getting November 11.. Having such a beautiful family I was still not happy all I can think about is how I would be better off dead than suffering the way I suffer but I refuse to give up ! I will search for answers and become an example for many young kids who take drugs and inhalants as a joke .. Although I will never have my old life back I will make my new one worth living for ! I will search for answers even if it takes me looking under rocks ! But if anyone with the same problem has found something that has helped with their brain damage even HBOT ?? Please let me know ... Thank you
edwardo

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Posts: 38
Reply with quote  #36 
Hi Cecilia.

Thank you for sharing your story with us, I think we have something in common that very few other people have, I'm not going to go into full detail about my story as I think it's on another thread but I can say after a year of inhaling petrol day in day out the past 16 years have been living in hell, it changed me, it turned me to the dark side and destroyed my life, my soul, it took everything that was good in me away, I think I suffered more then any normal man should.

I don't no about hbot because I'm not pursuing it anymore, I was 6 month's back, your desperate to find something that will end the hell your going through, I had 20 hbot sessions lined up in my own home town at a reduced rate, I saw a neurologist, got a cat scan, never paid for the scan or followed up with the neurologist because I managed to get better with medication alone.

Up until this point I had literally been going crazy from what I was experiencing in my mind, intense paranoia and mild hallucinations combined with intense major never ending depression.

Since the the start of the summer I started to get better and gradually all of the symptoms are finally starting to clear, wouldnt say Im a 100% just yet and I may never be but I can't tell you how good this feel's for all of it to fade away and for the mind to become clear again, to be able to smile again and enjoy life, it's great.

Don't know if it's any help to anyone but the medication that has worked for me is Lyrica, a drug with similar effects to valium and mirtazapine.  

Hope everyone get's well.

Ed
CeciliaRaul

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Reply with quote  #37 
Thank you Ed ! I'm very happy to hear your feeling better .. Yes I remember you mentioning the 20 hbot sessions that's why I chose to look into it .. It sounds very helpful ..how much were they going to charge you for those sessions ..we don't have a lot of money but were willing to put whatever we have so I can get better I'm not expecting a 100% recovery myself because I'm open to fact that that that might not happen ...I've always been Popular at school so many people know me even though they don't know about this ..I have a great outgoing family so even whenever my depression wants to get the best out of me I always have my family to make me feel better..if my family refuses to give up on me I refuse to give up on myself . Tomorrow I have my first appointment with a psychiatry so that's a step [smile]
edwardo

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Posts: 38
Reply with quote  #38 
I'm glad to hear you have finally decided to get help, depend's where you are, in the U.S private clinics charge 20,000 for 20 sessions, in the UK and Ireland there's charity's that do it 50 euro per session.
deloissiuda02

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Posts: 1
Reply with quote  #39 
I got to this sight because my daughter I found out a few days ago the real reason she totaled her car, she is 30  for crying out loud she has started using the gas duster... I am going to baby sit her tomorrow.. She has lost her job,   has a degree in phycology and she had a wonderful job.  she doesn't even care.  totaled her car.... could have been killed... all because she at the age of 30 decided to inhale gas duster and now I find out and there is no stopping her,.  I will post more later on, I didn't have a clue that there was such a thing.  I happy that I found this site and I will continue to post but it will be later,  I have to go and baby sit my 30 yr old daughter....oh yes and she lost her job... more later.
Manid

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Posts: 6
Reply with quote  #40 
Quote:
Originally Posted by edwardo
Don't know if it's any help to anyone but the medication that has worked for me is Lyrica, a drug with similar effects to valium and mirtazapine.  

Hope everyone get's well.

Ed

Hey, Edwardo! How are you doing, mate? Your story gave me some hope. It seems like you're the only person here who have some useful information on how to get out of this numb state caused by long-term inhalant abuse.
How are you feeling now? Have you tried other meds?

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braindamaged

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Reply with quote  #41 
I have been living with brain damage from toluene and acetone (used at ages 14-16) for 38 years. I am having much success reversing some of the damage using a regimen of high-dose fish oil. I have read that some people are mostly back to normal after one year of this treatment. I am taking 12 capsules of fish oil in three divided doses, each capsule being 1200 milligrams. The DHA in the fish oil actively re-myelinates the entire central nervous system, and rejuvenates the neurons' membrane, making it more supple, flexible and permeable. This all translates to better communication between brain and nerve cells, at a faster rate. The benefits can be directly observed by the rejuvenation of the retinas of the eyes, manifesting as brighter, more colorful and detailed vision.

I highly recommend high dose fish oil therapy, for at least a year.



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Christopher L. Johnson
Manid

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Posts: 6
Reply with quote  #42 
Quote:
Originally Posted by braindamaged
I have been living with brain damage from toluene and acetone (used at ages 14-16) for 38 years. I am having much success reversing some of the damage using a regimen of high-dose fish oil. I have read that some people are mostly back to normal after one year of this treatment. I am taking 12 capsules of fish oil in three divided doses, each capsule being 1200 milligrams. The DHA in the fish oil actively re-myelinates the entire central nervous system, and rejuvenates the neurons' membrane, making it more supple, flexible and permeable. This all translates to better communication between brain and nerve cells, at a faster rate. The benefits can be directly observed by the rejuvenation of the retinas of the eyes, manifesting as brighter, more colorful and detailed vision.

I highly recommend high dose fish oil therapy, for at least a year.



Thank you a lot, sir! Honestly, I had no idea that fish oil could have any beneficial effect on reversing the damage caused by inhalant abuse. I'm going to start taking it today. Luckily, I've got some fish oil pills stacked in my kitchen drawer already.
How did you realize you had damaged your brain? What were the symptoms?
Thank you again for sharing this information! I hope it helps everyone!


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dunk123

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Reply with quote  #43 
I'm on the same boat as you.. And everyday is a struggle to learn and to do new things I was an athlete in high school and now my motar skills are shot I don't enjoy being involved in things and I'm scared to be around people because I feel like a different person everyday. and everyday that goes by its pretty much a blur.. I hate what I have become I've lost relationships and its hard for me to hold them.
Addicted

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Posts: 6
Reply with quote  #44 
SLR2009,

You mentioned that you were on an antidepressant. I was just on one and it made me so sick. It made me feel drunk. I was dizzy, lightheaded, cold sweats, and it basically made me sleep all day and night right before I stopped taking it. I suddenly stopped it, cold turkey. I could not take it anymore. That led me to a deep depression and mood swings.
I wasn't even taking it for depression to being with. I have fibermyalgia. Now I'm in pain and depressed, my brain chemistry is completly off.
Have you considered it may be from your medication?
billiejean29

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Posts: 1
Reply with quote  #45 
I wonder what happened to slr2009, he hasnt posted in a few years. I have basically the same symptoms as him and they just keep getting worse. If i drink alcohol or take any anti depressants everything gets permanently worse. Vision, memory and thinking are all really impaired for me. I tried hyperbaric oxygen a few weeks ago and it instantly made it all much worse. Now i stumble over words and have trouble trying to say what i mean in conversations. I'm not trying to discourage others from trying hbot because it may be able to help you. Just maybe use it as a last resort.
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